1. Allodynia (Hyper sensitivity to touch)
One of the weirdest symptoms I’ve dealt with since I was diagnosed is called Allodynia. Its a sensitivity to touch but this isn’t your typical type of sensitivity. Imagine feeling like every piece of clothing you put on your body feels like scratchy wool no matter how buttery soft the material. That is what allodynia feels like. At least for me. It makes it hard to do anything because I literally am so distracted by the sensations all over my skin that all I want to do is…well…wear absolutely nothing. I know, super weird. But its an issue I’ve dealt with on and off since before my diagnoses. Post diagnosis I finally got a name for it. While I don’t deal with this symptom constantly…thank the universe…when it hits its quite frustrating.
2. Foggy vision
Is it foggy or is it me? I’m guessing that’s not a question most people ask themselves. But it's one I ask myself from time to time. Imagine you are looking through a weak fog or camp fire smoke and you get the experience of what this symptom is like. Now I feel incredibly blessed that each time this has happened it’s gone away. That is not the case for everyone. Some people start getting foggy (aka blurred) vision and their normal sight never comes back. For me this symptom comes on rapidly, lasts a few hours to a day and then subsides. I usually need good resting sleep to get it to go away and that is not always possible
Yes you read that right. One of the weirder symptoms I deal with is speech changes. For me this has manifested in certain words suddenly being spoken with a different accent. Not all of my speech, mind you, just a word here or there. I’ll be talking and all of a sudden I’ll say “about” with a more Canadian accent, or hello in a British one, the most amusing yet was when I said good morning to a friend of my with a clear southern US accent. We both looked at each other for a solid minute and were like “what just happened to your voice”. I’ll also have pitch breaks or slurred speech now and again. While most of the time this is funny it can be VERY ANNOYING!!!!
4. Crazy Hands—aka loss of fine motor control
Imagine you are typing on a computer and you suddenly lose all control of your fingers. You’re typing away and suddenly the words on the screen start looking a bit like this: I haev no cnrol fo my fingers rihgt nw. Some of the words are fine and you can generally tell what I was trying to write but the even the computer is like “What????”. It can’t figure out what I meant to write. Luckily when this happens I’ve gotten skilled at the talk to text feature and simply switch tactics and start dictating my emails and other work/life related communications. I often laugh quite hardily as sometimes as the creativity of auto correct. This feature has come up with some pretty unique translations of my gobbledygook. One of the funniest ones was when I attempted to write “grant opportunities” and it some how corrected to “great titties”. I still laugh about that one every time I have to write opportunities. At least this weird symptom has had the side effect of hilarity. hahahahaha
Hi, I'm Liz. I like to write about life and the wisdom I cull from it. I use words and images to inspire empathy and connection with each other and the world.